https://rarediseases.info.nih.gov/diseases/7706/sturge-weber-syndrome

A collection of disease information resources and questions answered by our Genetic and Rare Diseases Information Specialists for Sturge-Weber syndrome.

https://www.medicalnewstoday.com/articles/220430.php

Feb 22, 2019 ... A number of health problems can arise with Sturge-Weber syndrome. Most of these emerge during the first 12 months of life.

https://thriving.childrenshospital.org/living-with-sturge-weber-syndrome/

May 31, 2013 ... Ryan was diagnosed with Sturge-Weber syndrome as an infant. Now that his seizures are under control, he can focus on being a regular kid.

https://sturge-weber.org/new-to-swf/understanding-sturge-weber.html

Sturge-Weber Syndrome (SWS) (encephelotrigeminal angiomatosis) is a ... and/ or brain involvement should see an ophthalmologist in the first few weeks of life.

https://www.kennedykrieger.org/patient-care/centers-and-programs/sturge-weber-syndrome-center/about

Sturge-Weber syndrome (SWS) is a vascular condition where a child is born with ... Give to Sturge-Weber Syndrome research and help children enjoy fuller lives ...

http://atlasgeneticsoncology.org/Kprones/SturgeWeberID10074.html

Sturge Weber syndrome, Authors: Kristin Thomas-Sohl, Anne Comi. Published in: Atlas Genet ... and mental retardation. Life expectancy is thought to be normal.

https://www.disabled-world.com/health/neurology/sturge-weber-syndrome.php

Sturge-Weber syndrome a neurological disorder indicated at birth by seizures ... with Sturge-Weber syndrome will develop seizures during their first year of life.

https://www.seattlechildrens.org/conditions/common-childhood-conditions/sturge-weber-syndrome-sws/

The most apparent sign of Sturge-Weber Syndrome is a birthmark or port wine ... happen before a child's first birthday and can continue throughout their life.

https://themighty.com/2015/03/a-letter-to-the-terrifying-disorder-my-doctor-told-us-not-to-google/

Woman writes a letter to her daughter's Sturge-Weber Syndrome. ... I looked up life expectancy, treatments, possibility of a cure. I researched day and night; ...

https://rarediseases.org/rare-diseases/sturge-weber-syndrome/

Sturge-Weber syndrome (SWS) is a rare disorder characterized by the ..... whether this treatment improves long-term cognitive function and overall quality of life.