Web Results

rarediseases.org

Visit our new platform where rare disease patients can fundraise, communicate and ... recognition of rare diseases as a global health challenge. Visit site > ...

rarediseases.org/for-patients-and-families/information-resources/rare-disease-information

Enhancements to NORD's Rare Disease Database and website were made possible through a grant from the Anthem Foundation, the charitable arm of Anthem, ...

www.rarediseaseday.org

The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and ...

rarediseases.info.nih.gov

GARD provides the public with access to current, reliable, and easy-to- understand information about rare or genetic diseases in English or Spanish. Read more ...

rarediseases.info.nih.gov/diseases

About. GARD maintains a list of rare diseases and related terms to help people find reliable information. In the United States, a rare disease is defined as one that ...

www.rarediseasesnetwork.org

The Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare ... Please stay tuned as we update this site over the coming months .

www.orpha.net/consor/cgi-bin/index.php

The portal for rare diseases and orphan drugs. "Rare diseases are rare, but rare disease patients are numerous". Access our ... Other rare diseases websites.

www.pfizer.com/science/rare-diseases

Pfizer is working to eradicate rare and orphan diseases by developing effective treatments for patients struggling with rare genetic disorders.

www.rarediseasesinternational.org

Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases.

www.eurordis.org

EURORDIS - Rare Diseases Europe, is a non-governmental patient-driven alliance of rare disease patient organisations representing 956 rare diseases patient ...