What Support Systems Are Available for Families Dealing With Moyamoya?

What Support Systems Are Available for Families Dealing With Moyamoya?

Families dealing with moyamoya disease and other disabilities can reach out to national and local organizations, community services, health care providers, counselors and friends for support, according to the Centers for Disease Control and Prevention. WebMD recommends resources such as Moyamoya.com and the Genetic and Rare Diseases Information Center.

The Children's Hemiplegia and Stroke Association, National Organization for Rare Disorders, National Rehabilitation Information Center and National Stroke Association all work to support people with moyamoya and their families, according to the National Institute of Neurological Disorders and Stroke. ClinicalTrials.gov directs families to relevant research projects, and RareCaregivers.org helps families dealing with rare diseases, including moyamoya.