Q:

What are some support groups for myelofibrosis?

A:

Quick Answer

The Leukemia & Lymphoma Society is dedicated to improving the quality of life of patients with cancers such as myeloma, and offers free support groups for anyone affected by blood cancers, as of 2015, notes the organization. The MPN Education Foundation offers both online and in-person support groups for those with myeloproliferative neoplasm disorders, including myelofibrosis, according to the foundation.

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Full Answer

The Leukemia & Lymphoma Society's Family Support Groups usually meet once per month in community gathering places such as libraries, local conference rooms or at local chapters of the group, notes the Leukemia & Lymphoma Society. Health and mental health professionals with oncology experience are present at the meetings, which give those with conditions such as myelofibrosis and their loved ones a place to meet others in similar situations. People can find local meetings through links on the Leukemia & Lymphoma Society's website.

The MPN Education Foundation offers access to an online mailing list for those suffering from myelofibrosis and for their families, according to the organization. The list is free and run by volunteers, and is focused on providing information and serving as a place for people to share their coping experiences. The MPN Education Foundation also offers face-to-face support groups for patients and their loved ones, and people can find local meetings using information provided on the organization's website.

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