Patient services at the Center for Duchenne Muscular Dystrophy at UCLA include a pediatric neuromuscular clinic, clinical research trials, information about muscular dystrophy and news reports about the disease, according to the facility's website. As of December 2015, the pediatric clinic takes place twice monthly at the center. In addition to providing medical care, the clinic also has Child Life specialists who offer entertainment, distraction and emotional support to patients and family.Continue Reading
Medical personnel at the Center for Duchenne Muscular Dystrophy are committed to increasing participation in clinical research at the facility, the facility states. The center's website provides CDMD researcher contact details for several studies, so interested patients are able to obtain further information.
Links to material about Duchenne muscular dystrophy are on the CDMD website. Topics include diagnosis, treatment, emergency care, surgery considerations and educational matters. A tab provides connections to advocacy group and parent organizations. The site also has a section aimed directly at kids and teens. It includes recommendations for keeping active, as well as activities to avoid, such as weightlifting, running, using stairs and playing on trampolines.
The website for the Center for Duchenne Muscular Dystrophy links to news reports about the disease from UCLA and news outlets. Information includes press releases, personal stories and breakthrough studies.Learn more about Conditions & Diseases