Some online resources that provide information on sickle cell disease are the Sickle Cell Disease Association of America, National Human Genome Research Institute and the University of Rochester Medical Center. All three resources have a wealth of information on topics like research, clinical trials and types of treatment options for this disease.
The Sickle Cell Disease Association of America has a section that contains information on the disease, genetic counseling,research,screening and answers to many FAQs. The association also offers a newsletter. The National Human Genome Research Institute givesfacts like that sickle cell disease is a hereditary disorder that is caused bya mutation in hemoglobin. The Institute also offers additional information on clinical trials and links to other sites related tosickle cell disease. Similarly, the University of Rochester Medical Center has an online medical encyclopedia that provides information on sickle cell disease like the different variationsof sickle cell disease, symptoms, and treatment options.Some variations of this disease include sickle cell anemia and sickle cell-hemoglobin E.