Muscular Dystrophy Association Clinics offer a multidisciplinary team involved in the most current research, according to the official Muscular Dystrophy Association website. Searching for a medical treatment for muscular dystrophy requires seeking a variety of physicians and specialists to slow the progress of the disease and offset the effects of the condition on daily life.Continue Reading
Two hundred clinics have been created as part of the Muscular Dystrophy Association, or MDA, network across the United States. Different centers may focus specifically on Duchenne muscular dystrophy or amyotrophic lateral sclerosis. Psychological and social concerns are addressed in addition to aid from specialists such as speech and language therapists, physical therapists, neurologists and cardiologists. Access to new treatments and clinical trials is a benefit of the services at MDA centers, as well as assistance in addressing daily life issues of living with a disability. Locations of offices and education for patients and families can be found at the official Muscular Dystrophy Association website.
To pay for medical care, some families may qualify for Supplemental Security Income through the Social Security Administration. The paperwork required can be exhaustive, and DisabilityBenefitsCenter.org suggests hiring a Social Security Disability lawyer for assistance with forms and appeals. However, families with children with a severe diagnosis or a long-term disability can qualify for a Compassionate Allowance, which eases the bureaucratic hurdles.Learn more about Conditions & Diseases