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Web Sites

Carolina Fragile X Project - A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them.

Conquer Fragile X, Inc. - Creating a virtual research center in Israel to find a cure.

Fragile X Association of Australia - Information on this disease, medical aspects, education, references, contacts and what's new in Australia

Fragile X Association of Southern California - Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation.

Fragile X Research Foundation of Canada - Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join.

Fragile X Syndrome - Diagnostic and Carrier Testing - A Policy Statement from the American College of Medical Genetics.

FRAXA Research Foundation Home Page - Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.

Living with Fragile X - One family's account of raising 3 children with Fragile X.

Maryland Fragile X Resource Group - A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources.

Online Support Group - Support group for Family's who are dealing with Fragile X Syndrome.

Pediatric Oncal - Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations.

The National Fragile X Foundation - Features information about the disease, its treatment, and inheritance.

See Also

Chromosomal (11)
Causes (0)